Miracle Morgan: "Tomorrow will be a turn around day!"

Monday, March 11, 2013

"Tomorrow will be a turn around day!"

Dr. Clark and Dr.Lee came in just now to say she was looking good. They said the sleepiness is normal for the first three days after surgery. They said that tomorrow she will perk up. She does open her eyes and tries to participate with her therapies but still has a flat affect. However she is looking more to her left and had good head control when they stood her up in the stander. She also moved her left arm and raised it up at her shoulder! The director of rehab will be in later to assess her to see if she needs to go to inpatient rehab for awhile for more intensive therapy. Praise The Lord for her progress today and still praying for a speedy recovery. Oh and yes, very importantly, thanks to The Lord that she has had no more seizures since a very brief one on Saturday night!

1 comment:

AnonymousMarch 11, 2013 at 11:27 PM
This reminds me of when I was with my brother after his brain surgery. He had such a flat affect, very quiet, wanted to just sleep, no interaction with others unless asked a specific question. It was hard to see him like that because he is so opposite of that, talkative, cracking jokes, life of the party etc. All this to say, it was the brain swelling after surgery that caused this. After about a week, he was his ol self again. Take courage my friend, Morgan IS that beautiful, energetic, bundle of joy that The Lord blessed you with. Remember what I told you about my brother at retreat, he is a WALKING miracle, and Morgan IS too! ~Love, Margie
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson