Miracle Morgan: Long night again

Tuesday, March 26, 2013

Long night again

Another sleepless night of seizures back to back. Poor baby. So of course she wasn't as alert for her therapy today, but did participate. The therapists were very impressed that now she is able to get up to kneeling from lying on the floor, can stand by herself, and is walking some. Yesterday the PT put her in a gait trainer to help support her posture and she walked around the gym! She is using her left hand, although doesn't prefer to if her right hand can do it. So the therapists hold down her right hand and make her use her left to reach for something she really wants (like a banana). I see such progress, but these awful seizures are interfering. They zap her energy, however, I pray they are not effective in harming her in any way. Thank you all for your continued prayers. Please pray for some sleep for all of us tonight!

2 comments:

AnonymousMarch 27, 2013 at 4:07 PM
Our Prayers are with your family, and for the seizures to stop all together. Sometimes it is four steps forward and two steps back, but she is making progress and that is awesome.

God Bless you and your family,

Amy, Wes, Tia and Jason
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AnonymousMarch 28, 2013 at 6:21 AM
Praying Jeananne. Our cell group has you and Morgan in our prayers too. I am so happy to hear that Morgan is making stride forward! We will continue to pray that the seizures stop.

Blessings,
Rene Geistweidt Ince
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson