Tuesday, February 25, 2014

"She had an awesome day!"

Morgans teacher said this yesterday. For her to use the word "awesome" to describe a day at school for Morgan lately is really amazing. She said Morgan sat at circle time without resistance and did not get aggravated or irritable. So this is wonderful news for which I am grateful. Also, this past week, when I picked her up from school one day, she skipped a little and smiled and then ran toward me with her arms outstretched. This melted my heart. On Monday, we have an appointment with the rehab doctor who Dr. Clark referred Morgan to. We are praying he can help us get more therapy for Morgan to help us with her behavior.

Tuesday, February 18, 2014

New Diet, so worth it

I have found my posts getting fewer and farther between. It has definitely been an adjustment lately with Morgans new diet. Yes, she has been on a special diet for several years, but this is different. She is so limited in what she can eat and I find myself at the grocery store almost everyday. Also, it is hard to find a lot of it at our local grocery store. However, she is so worth it of course. In just two weeks of being on the diet, the teachers have used the words "more focused and calm". This is not for every day, but at least there were some days when she was. The doctor explained to me about the importance of avoiding these foods for awhile to allow her to heal, then we can gradually start working foods back in. We also found out from another of her blood tests that she is deficient in B12 and low in several of the B vitamins. So this could explain some of the behavior issues as these help the body to deal with stress. It all helps to see the "why" behind a lot of it and that we have a plan to help her. I can do this in this season of my life. I can do all things through Christ who strengthens me. I can do this for her. Thankfully she is sleeping at night now so at least I get sleep at night. And, thank The Lord for our nurse who helps me, she truly is amazing!

Tuesday, February 11, 2014

Going off all seizure meds!

Morgan had an appointment with Dr. Clark yesterday. Again, he said she looked so amazing. He said we can reduce her meds slowly again until she is completely off! He said she is doing great. The EEG did show some "activity" but it was in the right temporal lobe which is the part that is disconnected! "So therefore it should not affect her" Dr. Clark said. We KNOW it will NOT affect her. Thank you for joining with us in prayer. Also, he is referring Morgan to another specialist, a director of rehab that can help us get more intense therapy for her. Thank you for your continued prayers for strength and wisdom as we deal with behavior issues. However, it is a good sign she is developing and progressing as she knows what she wants. We pray she is able to communicate in a positive way and channel these behaviors appropriately. And yes, we believe she will communicate by talking!

Monday, February 3, 2014

Praying this will help

Two of Morgans tests came in. She does not have celiac so praise The Lord! However, she does have ALOT of food sensitivities. We tested 100 foods and there only about 20 that she does not have a sensitivity to. There were a couple of foods that I give her just about every day that she was severely sensitive to. We also did a fatty acid panel and found deficiencies but in one specifically, EPA, that was very low and most likely causing inflammatory responses. To help with this, we will be supplementing with a fish oil. With these findings, it makes sense that she is so hyperactive with emotional and behavior issues. One issue we are dealing with again is her climbing on the couch and hanging over the back of it, upside down. It scares me to death especially since we have concrete floors. She used to do this but then hadn't done it in awhile until recently. I really think she has a headache, or a pressure feeling, that she is trying to relieve. I pray that by leveling all this out, she will feel better and have better behavior.