Miracle Morgan: A day at home

Friday, March 22, 2013

A day at home

No therapy on Fridays, at least not in Cedar Park. I worked with her at home some. She is just about walking by herself( when she is not tired). My mom came and stayed with her for awhile so I could run some errands, that was so nice. Morgan had some seizures today, having two in less than an hour during her nap. She still seems to not feel good. That's why I haven't posted any recent pictures. She doesn't have that sparkle of happiness in her eyes and has not smiled in awhile. It is so hard for me to see her this way, and I don't know what to do for her. Also, she can't tell me how she feels yet. It is frustrating for both of us. I know that one day, she will be able to talk and tell me. I pray for patience in waiting on that day.

1 comment:

kathyMarch 23, 2013 at 5:19 AM
Hi I just thought you might like to know first hand how I felt long ago when I had seizures.
I seemed to have them at night when I was sleeping. The next couple days I was in a fog. Everything was harder to comprehend and I was just very tired.
When I was on medicine to control them, I was even in a deeper fog almost like I was drunk. I couldnt even walk straight.
Eventually they got the dose right (THEY SAID).
Later on (a couple of years) I went to a different Dr and had the whole gamut of tests again and She came to the conclusion that the dose I was taking then would not stop any seizure so she told me to stop taking the medicine. I have been seizure free since 1984.
God will Bless your Morgan...Sit back and just watch!!!!
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson