Miracle Morgan: Day 1 in EMU

Tuesday, March 5, 2013

Day 1 in EMU

Today is a day of watching and waiting seizures. They need to "capture them" so they will know exactly where they are coming from. She had a good night last night. We are thankful she got rest and was comfortable, however, she didn't have any seizures. Even though we are are wanting her to have seizures(never thought I would say that) I am thankful she was able to rest last night after that long day yesterday. The nurses said it is very common for them not to have seizures the first night due to all the anesthesia. She is still sleeping comfortably this morning but has opened her eyes a few times and taken some sips of apple juice. We are praying for a good day to day, that she stays comfortable and that the staff is able to get the info. they need. We are thankful, Lord, that You are with her entire medical team and giving them wisdom.

4 comments:

AnonymousMarch 5, 2013 at 11:49 AM
Jeananne I am so glad she had a restful night.Wes and I and the kids wish we could be there for you, even if it is to just let you get some sleep. We love you and miss yall, please let me know how long Morgan is going to be in the hospital after Friday. If it is going to be awhile I will try to go down and see you.

If you need to just talk sometime let me know.

God Bless you..and God Bless your wonderful family.

Amy
ReplyDelete
Replies
Donna JonesMarch 5, 2013 at 3:06 PM
Keeping all of you in prayer.

Blessings,

Donna Jones
ReplyDelete
Replies
Julie WebberMarch 5, 2013 at 4:23 PM
Hello Billy and Jeananne, I hope this finds you all doing well. I am glad Morgan has had a good night and hope her day has been good too. I will keep yall in my prayers. I know God is with all of yall and will take care of everything.
IN HIS GRIP
JULIE WEBBER
ReplyDelete
Replies

Add comment

Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson