Sunday, January 26, 2014

Waiting on results

So now our next step is to wait for lab work results. We had lots of Morgans blood drawn last week and sent it off for testing. We are seeing a naturalist/homeopathic specialist who is helping guide us in what tests Morgan needs and what would hopefully help her. This is the same specialist that helped my mom with her migraines. We are checking all Morgans micronutrients, her fatty acids, Celiac markers, and food sensitivity. These tests will hopefully show us what Morgan needs from a nutrition standpoint in order to help her immune system. It should also help guide us in what kind of diet would be best for her. We want to help her in any way we can, and if it can't hurt, then it's worth a try. I will keep you posted when we know results. I am looking forward to useful information. I have prayed for guidance in the right direction and feel we are on the right track. God is placing these wonderful people in our lives for a reason.

Tuesday, January 21, 2014

It's the little things

It's the little things, that mean so much. The little things, that are so easily taken for granted. This morning, when racing around to get ready for work, we noticed Morgan had gone in her room. We went to see what she was doing. She was on her platform swing, swinging by herself! We had lowered it down several weeks ago so she can get on it by herself, sit on it, and push it with her feet. It was so cute and so great to see her entertaining herself with something appropriate rather than getting into stuff she's not supposed to or climbing on the furniture. Also, it was a great weekend. The weather was nice and we were able to be outside for several hours on Sunday. We could just sit and watch the kids run around. Morgan explored, ran up and down the sand hill, went from swing to swing, and jumped on the trampoline. A year ago, she had to be in a stroller or wagon when outside because she couldn't take more than a couple of steps without falling down. Also this week, Morgan and Will have been playing hide an seek really good together and Morgan has come to me wanting to rock! So thankful for how far she has come.

Wednesday, January 15, 2014

More advocates on our side

On Monday, I took Morgan to the pediatrician she had seen as a baby. He is actually the one that initially referred Morgan to a neurologist when she was 18 months old. For various reasons, she has not seen this pediatrician in about three years. I felt The Lord was leading us back to him. He referred Morgan to a pediatric developmental specialist who can evaluate her more specifically and recommend what she needs. I am thinking Morgan needs more therapy and have not pushed for it before because we were just so concerned with the seizures before. Now she is showing potential for learning and I want her to get all that she can to have the best quality of life. This pediatrician is so compassionate and so I am so glad I have one more advocate to help us out. When I went to pick Morgan up early at school on Monday, they were outside. I was expecting to find Morgan in the wagon with one of the teachers. However, it was so awesome to see that she was on the playscape with all the other children! She didn't want to leave so I let her slide one more time. It was just so amazing to see her being right up there with the other children, having fun. When a year ago, she was sitting on the ground in her own world. Praise The Lord for all He has done in Morgans life so far!

Wednesday, January 8, 2014

Good day at school!

Morgan's teacher said today that this was the best day she has had in a month! She said Morgan was very calm. She said Morgan made very good eye contact and she looked at another child and smiled! Morgan responded to "no" when told to not climb. The teacher was very impressed with her today because Morgan was so calm and eventhough she still explored, she was not destructive. So proud of you, Morgan! And brother Will had a great day too! Thank you, Lord for this day you have made. We are so thankful for each day, and give You thanks for such a wonderful day!

Wednesday, January 1, 2014

Reflecting on 2013

So much has happened this past year, in the life of our little girl. Here is just a very brief summary of the year to show the rough start and challenges that we endured, but that were so worth it. January: EMS calls and ambulance ride with overnight stay in hospital for clustering seizures February: another hospital stay for clustering seizures; doctor appointment and life changing decision by Morgans doctors to perform brain surgery; received test results that brain disease diagnosis was negative! March: brain surgery(lobectomy and resection) with two week stay in hospital; after the surgery, she went from inability to sit or stand, with left sided weakness, to walking independently in just three weeks! April: last seen seizure on April 11; three night hospital stay for UTI and the flu May: hospital stay for unexplainable and uncontrollable behavior issues June-Novemeber: no hospital stays, just enjoying life and staying very active! December: 24 hour EEG in hospital for confirmation of no seizures! So very thankful for the miracle of healing that occurred this last year and praying for more in this next year to come. So very thankful for our dear family and friends who were there for us in so many ways as we made it through the trials of this past year. We have seen the power of prayer this past year!