Miracle Morgan: Moving on up!

Sunday, March 10, 2013

Moving on up!

She is being moved up from ICU up to the third floor in just a few minutes. She slept all night last night. PT was in this morning early and helped her walk again. She was more alert. However, she tires easily and wants to sleep ALOT. Dr. Clark was in again and says this is normal for such a big surgery. He says she is looking very good. Tomorrow PT will try and put her in a stander to try and get more weight bearing through her left leg. I will continue to work with her too. I sat her up on the edge of the bed and fed her. Also trying to help her move her left side. We are putting her in a wheelchair to transfer her to her new room. She is sitting up good in it and holding her head up better today. Got to go and help transfer her up!

5 comments:

UnknownMarch 10, 2013 at 2:00 PM
Hi all,
Sounds like Morgan is making amazing progress! So glad to hear she is moving out of ICU and back to 3rd floor. Thank you for the updates! Continued prayers for Morgan to regain her strength and mobility! Much love,
Jeff, Mel, Blake, and Kelley
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AnonymousMarch 10, 2013 at 2:16 PM
Just again thinking of her. She is a miracvulous girl to have dealt with so much anyway she will get stronger. Just step step at a time and hope she feels a little better and not too many headaches . Thanks Jeananne for the update., I will check this daily on the sweetie . Blessings and love from the J ohnston's Tamra and etc.

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BonnieMarch 10, 2013 at 3:32 PM
Jeananne, I never got my name officially on the prayer vigil, but just wanted to let you know that our family is praying for all of you. I have also shared your story with others to pray... The body of Christ loves you guys and is standing with you. Love, Bonnie (from HOME retreat)
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AnonymousMarch 10, 2013 at 5:45 PM
Continuing to keep all of you in prayer and praising the Lord for all the positive progress---God is good! Love and prayers, Donna Jones
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Karen ShivelyMarch 10, 2013 at 7:50 PM
What wonderful news! We are so happy things are going so well! Thanks for the daily updates. Everyone is Singapore is still praying for you guys. Love, Karen
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson