Miracle Morgan: Better days. MRI tomorrow

Thursday, March 28, 2013

Better days. MRI tomorrow

It has been awhile since I have posted pictures. One reason being that she hadn't smiled much lately and hadn't been feeling very good. However, today I got some good ones of her walking! She walks all around the house now by herself. In these pics, she was in the kitchen(her favorite spot) and was reaching for something to eat. Then there is a picture that Billy took of her yesterday in therapy on a swing. The last two days in therapy, she has done very well, and has been more alert. Most likely because she has been sleeping better and having less seizures the last two nights! Praise The Lord! She has been smiling some again. She also continues to be more aware of her surroundings. Family members have noticed too. She watches what is going on, noticing other people around her. She interacts us with us more rather than being stuck in her own world. Just now, she followed Billy into the bedroom and stood and watched as he hung up clothes! Tomorrow she has the MRI. I am a little down about having to do it. She is doing better and I just don't like having to put her under anesthesia again. But the doctors need to make sure everything looks ok since the surgery, especially since she was having so many seizures. I want to thank you all again for all the prayers. They mean so much to us and have kept us going. I want you all to know that I read every comment you make on the blog or Facebook. I just don't respond individually to them as I would not be able to respond to all of them. It means so much to hear from you, either from friends I have known forever, or ones I have never personally met, or haven't talked to in years. I thank you for the words of encouragement, advice, scriptures, or sharing experiences. God bless you all!

2 comments:

AnonymousMarch 28, 2013 at 7:14 PM
So thankful for a better night last night---answered prayer. Will be praying regarding her MRI and also for a good night's rest tonight. So appreciate you taking the time to update---know you are very busy. Blessings,
Donna Jones
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AnonymousMarch 28, 2013 at 8:36 PM
Jeananne,

I am thrilled to hear how well she is doing and I haven't seen her since last Easter, but I see the change in her eyes. You can tell that she is seeing things differently. I can only imagine how stressed out and worried you have been, but I am so happy that God is healing her. She is so adorable and I know she will be the happy little girl we all knew she was. We love you and will continue our prayers for no more seizures and that she continues to get better.

love,

Amy
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson