Miracle Morgan: A sleepless night

Tuesday, March 19, 2013

A sleepless night

Morgan had another rough night last night and did not feel good today. She had seizures all night last night even after I had to give her the Diastat(emergency seizure medication). I got dressed and was headed to the ER again when her seizures lessened some in intensity and frequency, after lots of praying. She has not felt good today, understandably. I cancelled her therapies for today as she needed her rest. I was exhausted too but can't imagine how she must have felt, not sleeping plus having seizures all night. Poor baby. She is such a trooper though and when she perked up some, I of course did some therapy with her myself. Today she pulled herself up into a sitting position by herself. She was able to stand without holding onto anything for about three seconds. Tomorrow we have a postoperative follow up appointment with Dr. Lee's NP, and I have lots of questions. Despite the little setback, I see so much progress and see so much potential. I continue to focus on the progress. One true miracle today: her nurse that stayed with Morgan when she was three and was with us for over a year, is coming back to help us!! Long story short, we lost our most recent wonderful awesome faithful nurse the week before Morgans surgery as her husband got transferred to Houston. Having no nurse, I couldn't go back to work until Morgan went back to school. However, our first faithful nurse came through, and although she had resigned with the agency over a year ago, as she was so busy with her family, she is going back to work to help us! Praise God!

3 comments:

AnonymousMarch 19, 2013 at 7:10 PM
Standing in fervent prayer for Miracle Morgan!!!! So thankful to hear the good report of Morgan smiling and giggling. Praise you Father!! Praying for the Joy of the Lord to strengthen you Jeananne and Billy!! Blessings, The Zesch Crew
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AnonymousMarch 19, 2013 at 8:44 PM
I just pray that sizures may stop in name of Jesus so thst she can along with therapies in home as well. Give comfort to he rsweet parents . This is ask in your name I pray
Love you Johnston's
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AnonymousMarch 20, 2013 at 1:56 PM
Continuing to pray that the seizures will cease and praying for good rest for not only Morgan but the rest of you as well. Praise God for his provision of your former nurse :) Blessings, Donna Jones
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson