Miracle Morgan: November 2014

Sunday, November 9, 2014

Time got away from me this week. It's been almost two weeks since my last post. I am thinking about closing out my blog soon. However, have not decided yet. I have enjoyed this blog. It's been a place to write down my feelings and document Morgans happenings. It's also been a way to inform those of you I don't see often on how our lives are going. But, I have found that the few free moments that I have, when I could blog, I spend in prayer over Morgan and in research for anything here on earth to help her. God is guiding us on what is best for her. He has healed her, and as her brain is restoring, God is guiding us to all that can help her. I see how much the ABA therapy helps. She responds so well to someone working with her one on one. She catches on quick. However, her behaviors kick in and it takes consistency and intensive work to keep her on track. Something I can't do on my own with another child, a husband, a job and well, just life. In other words, I see her potential but it's a full time job to work with her to help her make progress. I know God will give us the answers as to what is best for our little girl. I do not lean on my own understanding but am seeking Him in all I do and I know He will direct our path. Thank you all for your prayers.

Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson