Miracle Morgan: Long day of hard work for Morgan

Sunday, March 10, 2013

Long day of hard work for Morgan

Just wanted to give a further update on the rest of Morgan's day. We are thankful that today she had better posture, better head control, and ate consistently. She has still been very sleepy, and we voiced our concern to the weekend neurologist. He said that a lot of times after this type of surgery their system gets "stunned". This means that they don't want to do anything unless they are prompted to do so. This is normal at first and as along as she is making progress daily, all is good. Well she has gotten a lot of prompting from us. We have sat her up in the bed and on the edge of the bed. We took her in a wheelchair around the hospital. We helped her walk in the room two more times today. She requires assistance to stand, her left knee buckles, and she needs assistance to help advance her left leg forward when walking. Also, her left arm is pretty flaccid right now. However, she was so much more alert after we did all this activity with her! She opened her eyes better and didn't drop her head over to the left anymore to try and go back to sleep. She worked so hard today, and we are so proud of her. We are praying specifically for continued progress tomorrow and strength in the left arm and leg. We are also continuing to pray for healing and restoration in her body, especially her brain. Thank you all for standing with us!!

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson