What we are dealing with now

Behavioral issues still. Morgan had a rough time over the holidays. Not sure if it was because of not being at home, in her comfort zone, being overstimulated with all that was going on, or being out of her routine. She was very agitated at times. Thankfully, we were able to spend a lot of time outdoors, which makes her happy. I think some of the behaviors are from her not being able to handle her emotions and throwing temper tamptrums from not getting her way. So in a way, she is developing by expressing herself. However, it makes life difficult for our family. So thankful for mine and Billy's understanding families. Rather than going to my inlaws for Christmas as planned, they came to our house. That way, we didn't have to travel with Morgan and she was able to be at home, where she definitely is more happy. Also, we have been adjusting some meds with Morgan. Ones meant to calm her actually seem to have the opposite effect on her. Also, she has a very hard time weining off of medications. There is a withdrawal phase with her which is almost worse than the side effects of the medicine. Also, if she is on too many supplements, she has an adverse effect. She seems to do better with just getting good nutrition in her diet. The smoothies I give her daily she loves and seem to be keeping her well so far this year, when the flu has been all around us. Next on our things to do is to get a blood test to check and see what specifically she is deficient in and supplement only in what she needs. This, along with a gluten free diet, has helped my mom with her migraines. We are always hopeful and always looking for ways to help Morgan. Thank you all for your continued prayers. We really feel Gods strength during this time.

Merry Christmas!

No seizures seen on EEG!

The nurse told me over the phone yesterday, no seizures were seen on the EEG! No formal report from Dr. Clark yet, he is still overseas at a conference. However, the nurse did say spikes were seen on the EEG that could cause risk for seizures. We are believing those spike will not only not cause any seizures, but will go away. Thank you Lord for healing her forever from these seizures. The nurse said that there were no concerns right now or he would have called us sooner. He just wants to follow up with us next month. Thank you all for your prayers and continued prayers for complete healing and restoration. We realize she still has a long way to go, but we are thankful for how far she has come in the last year since her surgery.

Having fun outside, even though it was still cold!

Making it through the cold days, the holidays, and being in the hospital

Morgan is an outside girl! I think she would stay outside 24 hours a day if she could. So, this cold weather has been challenging as she has to stay indoors. However, we have managed to keep her fairly occupied with all her fun activities indoors: her platform swing, her slide, the ball, her ramp, and the Bosu. Yes, Morgan has had a few melt downs here and there, from not getting her way,but that is usually handled with a quick time out to her bed/tent. We also survived the holidays, as Morgan does not usually do well traveling. However, the short distances at a time that we traveled, were not too bad. She had a few moments,but tolerated fairly well, considering. Morgan also survived her hospital stay. It was not fun, but we all did survive. She has gotten several EEGs before, however, she usually did not know what was going on and didn't seem to care. But not ts time! She screamed and kicked and cried her poor little eyes out for the solid hour and a half it took them to glue the leads on her. Then, she was able to walk around with a little back pack and a long cord. We were able to keep her fairly happy most of the time. She had a rocking chair and a play mat in her room. They brought her toys to play with. We also got to take her across the hall to a really cool sensory room. It had huge tumble forms, fiber optics, and a vibrating mat. This is all new since the last time we were there. Between, my mom, my aunt, my mother-in-law, and me, were able to keep her entertained. Morgan and I did not sleep well that night and were tired the next day. However, I will take that anytime over the nights we have had there before. So thankful, we did not have to be awake to watch for seizures and push that button. So thankful, for where she is today. Still don't know anything about the results from the EEG. I called Dr. Clark but he is at a conference until the middle of this week. So we will talk later this week. Will keep you posted. Thanks for the prayers.

Happy Birthday Morgan!! You're 6 today!

No news is good news

The nurse told us this morning that the doctor would not be able to look at the EEG until later today. There was no telling what time that would be, so we opted to go ahead and get our little girl out of that hospital and go home. They said they would call us if there was anything significant to discuss, otherwise, just consider it all good, and follow up with Dr. Clark in 6-8 weeks. However, I will be calling Dr. Clark's office in a few days to have him go over everything, which I know will be good! Thank you all for your prayers!

Happy now, but gave them a fight earlier when putting on the leads. Please pray for no seizures in the night. Doc will go over results in the morning

EEG tomorrow

Thank you all for your prayers as we head to Austin tomorrow for her 24 hour EEG. We pray that she will be calm during the placement of the patches( which requires gluing to her head). Also that we will be able to keep her happy during the full day and night we are in the hospital. We pray they will be able to effectively see what they need to see(which will be no seizure activity!). Thankfully, she will be able to move around with the little backpack of wires and can go across the hall to the playroom. I will keep you all posted, but I have faith everything is going to go well.