Miracle Morgan: Trying to stay positive

Monday, July 15, 2013

Trying to stay positive

Yes, trying to stay positive, when discouragement and disappointment are knocking at the door. Morgan had a rough weekend. We went to my parents house, and there were lots of people and kids running around. Morgan was very agitated, and over stimulated. When she is like that, she doesn't focus or interact much. Now today, she is happy and calm. I guess we really just can't take her out to places right now. Her brain just can't process all the information right now. Her system gets too overwhelmed. She is perfectly fine now that she is home. I was so discouraged over the weekend. For one, it was very stressful dealing with a screaming child. Two, I was looking forward to my family seeing how well she is doing. One comment that really helped and encouraged me was from Billy's friend who came down for the weekend. He had seen her in the hospital but then had not seen her since last year. He said she just looks so much better overall. She is more alert, bright eyed, and keeps her balance. He recalled how last year, she couldn't even walk a couple of steps without falling down. Comments like these really help and are appreciated.

1 comment:

AnonymousJuly 15, 2013 at 9:22 PM
Jeanie,

I can only imagine the frustrations you are going through but I have been following her progress and when you get discouraged please please look back on your post and see how far she has come. Three months ago she couldn't even sit still or look you in the eye, walk much less run down your road, but with Gods help and healing she is now able to do all of those things and so much more. I look forward to your posts and share with my friends how well she is doing. I am so proud of you and Billy and so happy for Morgan and Will to have parents who are so strong with God. May he continue to Bless you and your family. We love you and can't wait to see Yall again.

Love,

Amy
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson