Challenges and improvements

Well, this week has had it's challenges, as I talked about in the previous post. She has been very difficult to travel with lately. I think we have finally decided that it is boredom and frustration from being constrained in the car. She is so sensory seeking now and just wants to run all the time. They have been doing a lot of sensory integration therapy with her that has really helped, and I am trying to do it at home as well. She still holds her ear, and I called the neurosurgeon to ask why and what it is she might be feeling. He said she most likely was feeling muscle soreness from the cut muscles and nerve tingling from nerve regeneration. It was good to hear that this is part of the healing process. The therapists also assured us that her behavior changes were common during the first year after a brain surgery. Also nice to hear this is just part of it, but doesn't help the stress levels when you are dealing with a screaming child. We just know now that we can't try and take our places while she is going through this stage. So, family and friends please understand. On a positive note, we have still not witnessed anymore seizures. Her balance continues to be amazing. She is getting so much stronger. In therapy yesterday, she walked up four steps, holding onto the railing by herself, alternating her legs!! This is so amazing. For one, because she has always had to have lots of help stepping up stairs. Two, because she alternated her legs, meaning she was able to step up using her left leg also. (I will post a picture of this soon.) The PT just spotted her, but did not have to help her going up, just assisted some with the descent. So exciting to see the improvements as God is healing her!