Miracle Morgan: Better behavior and a new phase

Wednesday, July 24, 2013

Better behavior and a new phase

Morgan's behavior has been better this week. She is more calm, less agitated, and more focused. She also is traveling better in the car. Yay! She did start a new phase just practically overnight, while we were on vacation: climbing!! She now tries to climb on everything, chairs, the fireplace, the table! She not only climbs on it, but stands and walks too. Scary, when she climbs on our fireplace hearth and walks, especially since we have concrete floors. Although this keeps us on our toes, ( even more so than before), we are happy she is gaining the strength to do it and is developing physical skills as her brain is healing. She can now climb up the steps on the playground at school, by herself. She grabs hold of the handrail and steps up! Good job Morgan! Also this week, love, love, love to sit and watch Will and Morgan play chase. They also play hide and seek. I got some really cute pictures of them chasing each other and her looking for him. I will post them later this week. Enjoying her so much. Thinking about how much God has blessed us so much. So thankful He gave us our little girl back!

2 comments:

AnonymousJuly 25, 2013 at 1:41 PM
WONDERFUL!! God is SO good . . . SO merciful . . . SO full of loving kindness!! Praise His wonderful name!
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AnonymousAugust 13, 2013 at 6:38 PM
The comments jeananne has made are just wonderful and so prtoud of msd l ittle Morgan and you and Billy to regain the strentgh . Anyway , you all are an inspiratgion and the God has instilled in her abilitie sthat are being shown daily . Praise be to God and her loving family Ble ssings Tamra Johnston
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson