Miracle Morgan: So thankful for laughter!

Monday, April 8, 2013

So thankful for laughter!

Morgan was so interactive with the therapists today. She smiled and made great eye contact. When the speech therapist was making funny sounds and faces, Morgan actually giggled! It was so cute. It was such an appropriate response! What a miracle! God is so good. Our little girl seems so much happier now. Before the surgery, she never felt good, so we hadn't seen smiles or laughter in several years. In physical therapy, they put her on an adaptive tricycle. They strapped her feet to the pedals, and she pushed with her legs to make it go! The PT had to help guide her legs some, but Morgan did a great job and enjoyed it! After therapy, we went to get her vagus nerve stimulator increased. The doctor just puts this machine up to it and increases the settings. It will now send a higher frequency of impulses to the brain to help control the seizures. Her seizures have been less this past week. Praise The Lord! We are praying for the seizures to stop, and no more need for any medication. Please continue to pray for peace. She has been more calm overall, but today, she was showing a little hyperactivity. Not sure if it is the medicine or what, but we stand strong believing for peacefulness.

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson