"She had an awesome day!"

Morgans teacher said this yesterday. For her to use the word "awesome" to describe a day at school for Morgan lately is really amazing. She said Morgan sat at circle time without resistance and did not get aggravated or irritable. So this is wonderful news for which I am grateful. Also, this past week, when I picked her up from school one day, she skipped a little and smiled and then ran toward me with her arms outstretched. This melted my heart. On Monday, we have an appointment with the rehab doctor who Dr. Clark referred Morgan to. We are praying he can help us get more therapy for Morgan to help us with her behavior.

New Diet, so worth it

I have found my posts getting fewer and farther between. It has definitely been an adjustment lately with Morgans new diet. Yes, she has been on a special diet for several years, but this is different. She is so limited in what she can eat and I find myself at the grocery store almost everyday. Also, it is hard to find a lot of it at our local grocery store. However, she is so worth it of course. In just two weeks of being on the diet, the teachers have used the words "more focused and calm". This is not for every day, but at least there were some days when she was. The doctor explained to me about the importance of avoiding these foods for awhile to allow her to heal, then we can gradually start working foods back in. We also found out from another of her blood tests that she is deficient in B12 and low in several of the B vitamins. So this could explain some of the behavior issues as these help the body to deal with stress. It all helps to see the "why" behind a lot of it and that we have a plan to help her. I can do this in this season of my life. I can do all things through Christ who strengthens me. I can do this for her. Thankfully she is sleeping at night now so at least I get sleep at night. And, thank The Lord for our nurse who helps me, she truly is amazing!

Going off all seizure meds!

Morgan had an appointment with Dr. Clark yesterday. Again, he said she looked so amazing. He said we can reduce her meds slowly again until she is completely off! He said she is doing great. The EEG did show some "activity" but it was in the right temporal lobe which is the part that is disconnected! "So therefore it should not affect her" Dr. Clark said. We KNOW it will NOT affect her. Thank you for joining with us in prayer. Also, he is referring Morgan to another specialist, a director of rehab that can help us get more intense therapy for her. Thank you for your continued prayers for strength and wisdom as we deal with behavior issues. However, it is a good sign she is developing and progressing as she knows what she wants. We pray she is able to communicate in a positive way and channel these behaviors appropriately. And yes, we believe she will communicate by talking!

Praying this will help

Two of Morgans tests came in. She does not have celiac so praise The Lord! However, she does have ALOT of food sensitivities. We tested 100 foods and there only about 20 that she does not have a sensitivity to. There were a couple of foods that I give her just about every day that she was severely sensitive to. We also did a fatty acid panel and found deficiencies but in one specifically, EPA, that was very low and most likely causing inflammatory responses. To help with this, we will be supplementing with a fish oil. With these findings, it makes sense that she is so hyperactive with emotional and behavior issues. One issue we are dealing with again is her climbing on the couch and hanging over the back of it, upside down. It scares me to death especially since we have concrete floors. She used to do this but then hadn't done it in awhile until recently. I really think she has a headache, or a pressure feeling, that she is trying to relieve. I pray that by leveling all this out, she will feel better and have better behavior.

Waiting on results

So now our next step is to wait for lab work results. We had lots of Morgans blood drawn last week and sent it off for testing. We are seeing a naturalist/homeopathic specialist who is helping guide us in what tests Morgan needs and what would hopefully help her. This is the same specialist that helped my mom with her migraines. We are checking all Morgans micronutrients, her fatty acids, Celiac markers, and food sensitivity. These tests will hopefully show us what Morgan needs from a nutrition standpoint in order to help her immune system. It should also help guide us in what kind of diet would be best for her. We want to help her in any way we can, and if it can't hurt, then it's worth a try. I will keep you posted when we know results. I am looking forward to useful information. I have prayed for guidance in the right direction and feel we are on the right track. God is placing these wonderful people in our lives for a reason.

It's the little things

It's the little things, that mean so much. The little things, that are so easily taken for granted. This morning, when racing around to get ready for work, we noticed Morgan had gone in her room. We went to see what she was doing. She was on her platform swing, swinging by herself! We had lowered it down several weeks ago so she can get on it by herself, sit on it, and push it with her feet. It was so cute and so great to see her entertaining herself with something appropriate rather than getting into stuff she's not supposed to or climbing on the furniture. Also, it was a great weekend. The weather was nice and we were able to be outside for several hours on Sunday. We could just sit and watch the kids run around. Morgan explored, ran up and down the sand hill, went from swing to swing, and jumped on the trampoline. A year ago, she had to be in a stroller or wagon when outside because she couldn't take more than a couple of steps without falling down. Also this week, Morgan and Will have been playing hide an seek really good together and Morgan has come to me wanting to rock! So thankful for how far she has come.

More advocates on our side

On Monday, I took Morgan to the pediatrician she had seen as a baby. He is actually the one that initially referred Morgan to a neurologist when she was 18 months old. For various reasons, she has not seen this pediatrician in about three years. I felt The Lord was leading us back to him. He referred Morgan to a pediatric developmental specialist who can evaluate her more specifically and recommend what she needs. I am thinking Morgan needs more therapy and have not pushed for it before because we were just so concerned with the seizures before. Now she is showing potential for learning and I want her to get all that she can to have the best quality of life. This pediatrician is so compassionate and so I am so glad I have one more advocate to help us out. When I went to pick Morgan up early at school on Monday, they were outside. I was expecting to find Morgan in the wagon with one of the teachers. However, it was so awesome to see that she was on the playscape with all the other children! She didn't want to leave so I let her slide one more time. It was just so amazing to see her being right up there with the other children, having fun. When a year ago, she was sitting on the ground in her own world. Praise The Lord for all He has done in Morgans life so far!