Miracle Morgan: Going off all seizure meds!

Tuesday, February 11, 2014

Going off all seizure meds!

Morgan had an appointment with Dr. Clark yesterday. Again, he said she looked so amazing. He said we can reduce her meds slowly again until she is completely off! He said she is doing great. The EEG did show some "activity" but it was in the right temporal lobe which is the part that is disconnected! "So therefore it should not affect her" Dr. Clark said. We KNOW it will NOT affect her. Thank you for joining with us in prayer. Also, he is referring Morgan to another specialist, a director of rehab that can help us get more intense therapy for her. Thank you for your continued prayers for strength and wisdom as we deal with behavior issues. However, it is a good sign she is developing and progressing as she knows what she wants. We pray she is able to communicate in a positive way and channel these behaviors appropriately. And yes, we believe she will communicate by talking!

3 comments:

AnonymousFebruary 11, 2014 at 9:31 AM
Jeananne, wonderful news!!! I know God is hearing all of the prayers we offer for the Johnson family and especially little Princess....thank you for keeping us all posted. Big hugs to you and Billy for pursuing all available options on Morgan's behalf. I know she hugs you also!!! My HUG, G. Ruth
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AnonymousFebruary 11, 2014 at 1:01 PM
This is such great news! We will continue to pray for your family and specifically Morgan, that she will continue to make progress! Joyce Gholson
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Karen ShivelyFebruary 12, 2014 at 7:20 AM
We believe she will communicate by talking as well! Can't wait until that day comes! We will continuing praying for you all!
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson