Miracle Morgan: It's the little things

Tuesday, January 21, 2014

It's the little things

It's the little things, that mean so much. The little things, that are so easily taken for granted. This morning, when racing around to get ready for work, we noticed Morgan had gone in her room. We went to see what she was doing. She was on her platform swing, swinging by herself! We had lowered it down several weeks ago so she can get on it by herself, sit on it, and push it with her feet. It was so cute and so great to see her entertaining herself with something appropriate rather than getting into stuff she's not supposed to or climbing on the furniture. Also, it was a great weekend. The weather was nice and we were able to be outside for several hours on Sunday. We could just sit and watch the kids run around. Morgan explored, ran up and down the sand hill, went from swing to swing, and jumped on the trampoline. A year ago, she had to be in a stroller or wagon when outside because she couldn't take more than a couple of steps without falling down. Also this week, Morgan and Will have been playing hide an seek really good together and Morgan has come to me wanting to rock! So thankful for how far she has come.

1 comment:

AnonymousJanuary 23, 2014 at 6:58 PM
I am so happy to see her doing so well. She truly is a miracle. Thank you for all the updates!!!!

Susan
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson