Miracle Morgan: Reflecting on 2013

Wednesday, January 1, 2014

Reflecting on 2013

So much has happened this past year, in the life of our little girl. Here is just a very brief summary of the year to show the rough start and challenges that we endured, but that were so worth it. January: EMS calls and ambulance ride with overnight stay in hospital for clustering seizures February: another hospital stay for clustering seizures; doctor appointment and life changing decision by Morgans doctors to perform brain surgery; received test results that brain disease diagnosis was negative! March: brain surgery(lobectomy and resection) with two week stay in hospital; after the surgery, she went from inability to sit or stand, with left sided weakness, to walking independently in just three weeks! April: last seen seizure on April 11; three night hospital stay for UTI and the flu May: hospital stay for unexplainable and uncontrollable behavior issues June-Novemeber: no hospital stays, just enjoying life and staying very active! December: 24 hour EEG in hospital for confirmation of no seizures! So very thankful for the miracle of healing that occurred this last year and praying for more in this next year to come. So very thankful for our dear family and friends who were there for us in so many ways as we made it through the trials of this past year. We have seen the power of prayer this past year!

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson