Miracle Morgan: Meeting Goals

Monday, October 7, 2013

Meeting Goals

Today, we had Morgans ARD meeting at the school. It was so positive! Everyone focused on her improvement in the last year. We went over her previous goals and discussed new ones. The PT said " Morgan has mastered all her previous goals for PT!" This is so amazing. Especially because this is the same PT that said last year at the ARD, that she couldn't get Morgan to participate at all with her and she wanted to reduce her therapy sessions. It is so amazing, I will say it again. I am just remembering the ARD meeting last year, which was right after we had come back from the Houston doctor that gave us the devastating diagnosis. I was just so sad then and don't know really know how I got through that time, only by the Grace of God. But today, such a different meeting, for such a different Morgan! Her teacher, ST, PT, OT, developmental specialist, and principal were there. They all had new goals for her, and new ideas. The PT will now be working on more advanced trunk stability and balance activities on the bolster swing and eccentric quad strengthening with descending stairs. The OT will be working on more independence with feeding, and Speech therapy will be working on communication. The ST wants me to take pictures of Morgans things around the house, and things she likes to do and email them to her. They will be working on association with objects and pictures, and the PEC communication she has worked on before. They all spoke about her improved receptive communication, her understanding, and her improved awareness of her surroundings. Also, she is so interactive now and expressive of what she wants. It was such a positive meeting, and geered toward helping her progress. Again, so very thankful for Morgans wonderful team of teachers and therapists,and so thankful how far Morgan has come I the last year!

No comments:

Post a Comment

Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson