Miracle Morgan: Adjusting

Wednesday, October 2, 2013

Adjusting

The last two days at school have been a little better for Morgan. Her wonderful teacher, Mrs. Brooks, has come up with some ways to get her to sit. She made her a little activity belt she puts around her waist that has some sensory toys on it. Morgan will sit still with this for a time. She just always has to be "fiddling" with something. Anyway, it is helping. Her teacher is so wonderful in coming up with new ideas to help Morgan adjust. So this week, she is still climbing on everything at home and still has a temper and gets mad when she doesn't get her way. But, at least she is sleeping well at night. I am thankful for that. I remember all the sleepless nights. It means so much to be getting a good nights sleep now. Also, I am so thankful Morgan is signing some now! She signs "more" when she wants to jump more on the trampoline. It is so cute. She will get up and come over to me and sign it as she looks right at me. She knows what she wants, and now she is starting to communicate it. I know the temper and frustration must be from not being able to talk and tell us what she wants. So thankful, that the communication is improving in some areas.

1 comment:

AnonymousOctober 15, 2013 at 3:28 PM
Remain strong It's hard and trying on patience and physical energy you name it and your own will poower to get it all done- to your way and have to be patient . It's hard but God andf Morgan will mak e and fi nd a way .
Tamra Johnston
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson