Miracle Morgan: Good weekend

Monday, October 21, 2013

Good weekend

Morgan has been better the last few days. We went to my parents. First trip with Morgan in awhile. Since its only an hour drive, we thought we would try it. She was pretty happy most of the weekend. We stayed busy, being outdoors most of the time, and she did good. She also went right to sleep on Saturday night, even not being in her own bed. So thankful we could actually enjoy time traveling from home without high anxiety. She also had a good day at school, her teacher said. Hopefully, we are past the withdrawals and the behavior will continue to stay good. Now, if only the hyperactivity would stop! Still climbing on tables every second, so please pray for that to stop. Overall, the last three days have actually been enjoyable. So thankful! We see Dr. Clark in about 3 weeks to discuss further about the medications. I would love to be able to go off completely, but have to be sure it is safe. Might have to do another EEG. Anyway, she has the vagus stimulator which also helps. She is on a very low dose and that could be increased if needed. Will keep you posted when it gets closer to our appointment.

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson