Miracle Morgan: Challenges and blessings

Thursday, October 17, 2013

Challenges and blessings

The last two weeks have been challenging. The greatest challenge, however, is following a blessing. The blessing being: that we are able to reduce the seizure meds! Six months of no seizures and Dr. Clark says to go ahead! The challenge: withdrawal from the decrease in doseage. We have been here before, several times. We have had her on so many seizure meds before, and weaned off ones and added in new ones. The changes in these oh so powerful drugs has its effect on Morgan. She has moments where it's like a switch turns on the agitation all of a sudden. It's mostly at night since its the night time dose we are decreasing right now. After praying for wisdom, and after the discussion with our nurse, we determined she must have a headache and if not that, something was hurting. So we have been giving her some Tylenol at bedtime,and within about 40 minutes, she calms down and sleeps through the night. Again, so thankful for the sleep at night.

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson