Helping to raise Awareness

Last Monday, I went to Austin to participate in a documentary called Undiagnosed. This film is to help raise awareness in the medical community of what families go through not having a diagnosis. Thankfully, we have one now, but it was a long, painful process. We had some misdiagnoses along the way that led to an emotional roller coaster. The idea for the film came from the producers own experience with being undiagnosed with her own illness. It will probably be a year or so until it comes out, so will keep you posted. I wouldn't want any other families to go through what we had to. Hopefully this film will help medical professionals when dealing with these families. They are working on a resource for professionals to access that is a database of rare diagnoses with listed symptoms to better assist with diagnosing. One of Morgans physical therapists, who is also a medical liaison for families with children of rare illnesses, referred us to the producer. The website is still under construction but should have a trailer coming out soon. It is www.undiagnosedfilm.com. So excited and thankful that someone has taken notice and is making a film to raise the awareness of what some families have had to go through in the undiagnosed journey.