Miracle Morgan: Encouraging and working toward goals!

Monday, August 11, 2014

Encouraging and working toward goals!

On Friday, I met with Morgans summer school teacher to discuss Morgans strengths, interests, and goals for the new year. She was very positive and encouraging. She focused on what Morgan is able to do, her strengths, and then set goals to reach the next level. It was so good to see her strengths on paper. I definitely must focus on this and how far she has come since the surgery. It's hard to believe it's only been a year and a half since her surgery, because she has come so far and done so much since then. So I continue to focus on this. I have connected with another mom with a child similar to Morgan. We were matched through Texas Parent to Parent, an organization that provides information and guidance for families with special needs children. It is run by volunteers who themselves have special needs children. Great organization! Through visiting with this mom, I have been able to discuss how to find dependable attendant care. Basically, the attendant would be able to assist with whatever I needed, and I would be the manager. The agency would just be there for the financial aspect. So thankful for all the resources out there. Morgan qualified for this through her MDCP, which is the medically dependent children's program.

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson