Miracle Morgan: Watching Over Us

Sunday, August 4, 2013

Watching Over Us

I have been thinking about all the ways The Lord has taken care of us along this journey. One of the main ways He has supplied our need has been with Morgans nurses. We have been with a nursing agency since she was two. We discovered that there even was such an agency that Morgan would qualify for, through the direction of the ECI program(Early Childhood Intervention) where she received home based therapy. She qualified for 32 hours a week of nursing care. This enables me to be able to work part time, and know that Morgan is taken care of. The nurse goes to school with her when she is in school, and comes to the house when not in school. What I am so thankful for, is that God has provided the perfect, most caring and compassionate nurses for Morgan. The nurse we have now goes above and beyond. She really cares about Morgan and is always coming up with new things for her to do to challenge her to help her learn and develop. She has really been creative this summer. She rearranges our living room during the day, and turns it into Morgans activity room. She made her a ramp to climb, got her a therapy ball, a standing cushion, some books, and some weights. This is the nurse we had when Morgan was two, but she had to quit for a couple of years to stay home with her own children. We did go a year or so with several different nurses that didn't stay long because they were driving from Austin. Then we got another wonderful nurse that just adored Morgan also. She would do anything for Morgan as well. She had to move when her husband got transferred. This was right before Morgans surgery. Yes, it was stressful to think about not having a nurse after Morgans surgery, but God provided! When I called the agency, I asked them to please just see if our nurse from before, that kept Morgan when she was two, would be willing to come back to work. She was! She came back to work just for Morgan! However, she is going back to school to become an RN this fall, so we will need another nurse during this time. But I know The Lord will provide again!

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson