Miracle Morgan: The story behind Morgan's tricycle

Sunday, August 18, 2013

The story behind Morgan's tricycle

Yesterday, Morgan received her very own brand new adaptive tricycle, custom fitted to her. Therapeutic adaptive tricycles are for those unable to ride a standard bike or tricycle and allows them more independence, while helping to increase their strength, mobility, and balance. The heights, length,, foot pedals, and handle bars can be adjusted. The foot pedals have straps to hold her feet on. There are also straps to fasten around her trunk. It came with a helmet and a personalized license plate! So Morgan is a very blessed little girl. Her Terapists helped her to get it by first evaluating her need for it, taking measurments, and filling out an application. She qualified for the trike and was put on a waiting list. A wonderful organization called Ambucs raises money for the trikes. We are so thankful. She now has one of her own that she can ride everyday. It is so therapeutic. Her school also has one that she can ride when she is there. So Morgan has a lot of equipment now and a wonderful team of therapists to help her. Sadly, tomorrow will be our last day at Cedar Park outpatient because Morgan will be getting therapy when school starts.

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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson