Miracle Morgan: Not ready for traveling yet

Sunday, August 25, 2013

Not ready for traveling yet

This weekend, my family went on our annual vacation to Horseshoe Bay. The first few hours went good. My parents kept the kids Friday evening while Billy and I went to a concert with my sister and her husband. Billy and I were talking about how calm Morgan was and that it was nice to be able to go out and do things and to go places. Then, we got back to the hotel, and everything changed. Morgan would not go to sleep. She was wide awake at midnight and Billy had to take her home. Thankfully, we were only 30 minutes from home. She went right to sleep when she was in her own bed. All this really saddened Billy and I. Once again, our family was split up. Billy and Morgan came back for the day on Saturday and then went back home again that night. Through it all, I have to look at the fact that she was out of her routine, out of her comfortable environment, and over stimulated with new activities, people, sights, and sounds. She actually tolerated the day on Saturday fairly well, considering, until that night. I had pushed her past her limit by Saturday night and the meltdown happened. Now we are back home, and she is happy. She still climbs on everything and is constantly into everything she is not supposed to be. It is nonstop. How can a person go and go that much all day without ever slowing down? School starts this week and my prayer request is that she will be able to sit and attend to tasks to be able to learn.

1 comment:

NolaAugust 26, 2013 at 2:27 PM
Tossing an idea. If you routinely add lavender to her pillow and or bedding then when you travel add lavender to her bedding she will feel more at home and secure.
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Morgan's Story

Our daughter Morgan turned five in December. She was born healthy and developed normally, at first. She began having seizures at the age of two. Since then, her development has halted, even regressed. She now cannot talk. She walks, but is uncoordinated which causes her to fall multiple times a day. She rarely smiles or laughs, since she doesn't feel good.
She is an intelligent little girl that just seems to be trapped in her body right now. Doctors said that the seizures and the medicine were likely holding her back from progressing. She has been on seven to eight different seizure medicines and continues to have multiple seizures daily and nightly mostly during her sleep. The medicines were also affecting her negatively. Some of them made her hyper, some made her so lethargic she couldn't function, and some made her kind of crazy. We tried multiple treatments to try and help her such as diet, supplements, and therapy. We would see fluctuating results. All the while, she just wasn't developing or learning and continued to have daily frequent seizures.
She has undergone multiple testing and seen multiple doctors. Last year, after three days of being in the hospital with video monitoring of her seizures, she was just put on some more medication. At that time, we were told she was not a candidate for surgery as her seizures were coming from different parts of the brain.
In the last couple of months, Morgan's seizures had worsened so much, that we were having to give her the emergency treatments and even called EMS. It was no quality of life for her. We had to do something. We had been so against surgery before, but finally my husband and I had decided we were ok with it and were going to ask the doctors if it was an option now. Well, we didn't even have to ask them because when we got to the appointment, the doctors had looked over her MRI again. After studying her case with a panel of specialists, they had decided that she was now a candidate for surgery. They said they thought they could remove or disconnect most of the areas that were causing the problems.
We are praying and believing that the doctors will be able to get ALL of these problem causing areas. We are believing that ALL seizures will be gone and never return, and medication will no longer be needed. We pray for a speedy recovery with no initial temporary regression( which doctors said was possible). We also pray for total restoration and the ability for her brain to catch up and to learn and develop.

With God ALL things are possible

Thank you all so much for your prayers.
Jeananne, Billy, Will and Morgan Johnson