Back to school

Morgan's first day back at school was a little rough. She had a tough time sitting still and getting back in the routine. She is used to having her morning run and jump everyday, and she didn't get to do that. They do take them outside, but not until later, and the first day, it rained. However, they are finding what works for her to get her to sit and attend to activities. They use her compression vest which seems to help. Our little girl has come a long way in the five months since her surgery, but still has a long way to go. I am very thankful that she is doing so much more, even if it is being into everything. At least she is not sitting in a corner stimming on a zipper all the time like she used to. Yes, she requires a lot more energy and work, to keep her safe from climbing on everything, but she is stronger now and is exploring. I went to check on her in her room yesterday and she was sitting on her swing, swinging by herself! That made my day.

First Day of School

Not ready for traveling yet

This weekend, my family went on our annual vacation to Horseshoe Bay. The first few hours went good. My parents kept the kids Friday evening while Billy and I went to a concert with my sister and her husband. Billy and I were talking about how calm Morgan was and that it was nice to be able to go out and do things and to go places. Then, we got back to the hotel, and everything changed. Morgan would not go to sleep. She was wide awake at midnight and Billy had to take her home. Thankfully, we were only 30 minutes from home. She went right to sleep when she was in her own bed. All this really saddened Billy and I. Once again, our family was split up. Billy and Morgan came back for the day on Saturday and then went back home again that night. Through it all, I have to look at the fact that she was out of her routine, out of her comfortable environment, and over stimulated with new activities, people, sights, and sounds. She actually tolerated the day on Saturday fairly well, considering, until that night. I had pushed her past her limit by Saturday night and the meltdown happened. Now we are back home, and she is happy. She still climbs on everything and is constantly into everything she is not supposed to be. It is nonstop. How can a person go and go that much all day without ever slowing down? School starts this week and my prayer request is that she will be able to sit and attend to tasks to be able to learn.

Closing one door, opening another

So Morgans last day of outpatient therapy was Monday. We were sad, as we will miss them. They have helped Morgan so much. They were there with her to help her recover after her surgery and to regain strength and function that was lost at first. I will definitely keep in touch with them. They said they would always be there for us for any questions and possibly a reevaluation in a few months if necessary. We look forward to her returning to school next week where she will continue her therapy there. It will be good for her to get back in the routine. Also, next week, our wonderful nurse will be going to school herself to become an RN. She will still work part time with Morgan. Hopefully, our nursing agency will find us another nurse for the rest of the time. We are praying for that perfect nurse, just as He has provided for us before.

Morgan and her fabulous team of therapists!

The story behind Morgan's tricycle

Yesterday, Morgan received her very own brand new adaptive tricycle, custom fitted to her. Therapeutic adaptive tricycles are for those unable to ride a standard bike or tricycle and allows them more independence, while helping to increase their strength, mobility, and balance. The heights, length,, foot pedals, and handle bars can be adjusted. The foot pedals have straps to hold her feet on. There are also straps to fasten around her trunk. It came with a helmet and a personalized license plate! So Morgan is a very blessed little girl. Her Terapists helped her to get it by first evaluating her need for it, taking measurments, and filling out an application. She qualified for the trike and was put on a waiting list. A wonderful organization called Ambucs raises money for the trikes. We are so thankful. She now has one of her own that she can ride everyday. It is so therapeutic. Her school also has one that she can ride when she is there. So Morgan has a lot of equipment now and a wonderful team of therapists to help her. Sadly, tomorrow will be our last day at Cedar Park outpatient because Morgan will be getting therapy when school starts.

Morgan's New Tricycle!!!