Monday, December 9, 2013
Making it through the cold days, the holidays, and being in the hospital
Morgan is an outside girl! I think she would stay outside 24 hours a day if she could. So, this cold weather has been challenging as she has to stay indoors. However, we have managed to keep her fairly occupied with all her fun activities indoors: her platform swing, her slide, the ball, her ramp, and the Bosu. Yes, Morgan has had a few melt downs here and there, from not getting her way,but that is usually handled with a quick time out to her bed/tent. We also survived the holidays, as Morgan does not usually do well traveling. However, the short distances at a time that we traveled, were not too bad. She had a few moments,but tolerated fairly well, considering. Morgan also survived her hospital stay. It was not fun, but we all did survive. She has gotten several EEGs before, however, she usually did not know what was going on and didn't seem to care. But not ts time! She screamed and kicked and cried her poor little eyes out for the solid hour and a half it took them to glue the leads on her. Then, she was able to walk around with a little back pack and a long cord. We were able to keep her fairly happy most of the time. She had a rocking chair and a play mat in her room. They brought her toys to play with. We also got to take her across the hall to a really cool sensory room. It had huge tumble forms, fiber optics, and a vibrating mat. This is all new since the last time we were there. Between, my mom, my aunt, my mother-in-law, and me, were able to keep her entertained. Morgan and I did not sleep well that night and were tired the next day. However, I will take that anytime over the nights we have had there before. So thankful, we did not have to be awake to watch for seizures and push that button. So thankful, for where she is today. Still don't know anything about the results from the EEG. I called Dr. Clark but he is at a conference until the middle of this week. So we will talk later this week. Will keep you posted. Thanks for the prayers.
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