Wednesday, September 4, 2013
That was just last October
I want to take this time to focus on how far Morgan has come since the surgery. It really helps me to stay focused on the positive, when I have been so tired lately due to her hyperactivity. I just want to reflect again on the miracle of healing that has taken place in Morgan. Yes, she is still far behind and has a lot of catching up to do, but she has come so far since last year.
It was just last October when we saw a specialist in Houston who diagnosed her with a progressive brain disease. I remember that day, the worst, most devastating day of my life. She told us, without even seeing her MRI images, that was her diagnosis, no doubt (even though there was no knowing for sure until bloodwork was done). She told us that she would end up in a wheelchair someday. She said her diagnosis was so rare, there were only 50 cases in the world. Because it was so rare, she had never seen a child with it and never would again.
I remember watching Morgan try and walk down the hall that day as they were evaluating her. She couldn't even take two steps without falling down. She was so uncoordinated and unbalanced. It breaks my heart to think about it. I remeber hearing the news from the doctor (whom we had waited a year to get to see) that there was no treatment and just to go home and love her. She said we could stop looking (and basically stop trying to find a treatment). With devastation, we drove the long way back home, mostly in silence, but in tears, feeling hopeless at the time.
That was just last October.
Thank The Lord we didn't stop looking, that we got another opinion. Thank The Lord the test was negative. And Praise The Lord for all He has done in her life so far.
Yes, hard to believe that was just last October, cause look at her now!
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Thank God that precious Morgan has parents who would not give up in their quest to know the truth and find healing. Praise God for the amazing difference we have all seen since last October! We will continue to lift Morgan up for continued progress and your family for sustained energy.
ReplyDeleteJoyce Gholson