Morgan's New Bed!!

Good Report!!

Dr. Clark was very excited about Morgan's progress!! He was so amazed that he called Dr. Lee, the neurosurgeon who performed Morgan's surgery, to let him know. Dr. Lee was unable to see Morgan today because he is in Boston at a convention. Dr. Clark agreed to reduce her seizure medication, very slowly. We didn't even increase the stimulator because its not necessary to do so right now and hopefully never will be. We reviewed the genetic testing and it was all negative!! Praise the Lord!! The main thing we wanted to hear was that the brain disease diagnosis of MLC was negative. This was a horrible diagnosis given by a specialist in Houston. The test was highly specialized and took five months to get results. We had in the meantime had other testing done for congenital CMV. A specialist in the Netherlands had given us this diagnosis by studying her MRI in depth. We are at peace with this. This is a much better diagnosis. It is not genetic and not progressive at all, just something that happened. Now we can move forward to helping her as best we can and letting God heal her as He already is! Next appointment is in two months with both Dr. Lee and Dr. Clark. Thank you all again for all your prayers. God has answered!! We are so thankful!!

Doctor Appointment Tomorrow

Tomorrow is Morgan's appointment with Dr. Clark, the epileptologist. We are excited to discuss the possibility of reducing her seizure medication. I think Dr. Clark will really be amazed at how well she is doing. No seizures in almost two months!! He has not seen her since the end of March, at which that time she was still having some seizures. Also at this visit, we will discuss more thoroughly the genetic testing results. Thank you for our prayers.

Swinging!

Sleeping better

She has slept better the last couple of nights. This makes the whole family very happy! However, she has been pretty fussy off and on. She cried through her whole therapy session on Monday. She did better today, but still somewhat resistant. Don't know if its still her teeth bothering her, the effects of the new medicines, or that she is showing more emotion (more oppionated, wanting to do what she wants to do only). Anyway, she still did some good things in therapy today. She communicated by taking a picture of what she wanted to do, and handing it to the therapist! Way to go Morgan!! So thankful for every improvement we see!!

Insomnia

So now Morgan is waking up crying in the middle of the night, two nights in a row now. This is really not like her. Yes, she has gone through phases like this before, but for the most part, the last couple of years she has been a good sleeper. Despite, having had the seizures, but she would always go back to sleep. So I read the side effects of the antibiotic she is taking, sure enough: insomnia. Yes we are all tired, however like I was telling someone yesterday, this is nothing compared to what we have gone through before. I would take this any day over those awful seizures. Someone told me yesterday that they noticed how peaceful I was, that even through the lack of sleep and this new trial, it didn't seem to phase me. Giving God the glory fully!!

Feeling better

This has been another rough week for Morgan. She started vomiting on Wednesday, then got 103 fever on Thursday night. Thank The Lord that Tylenol kept the fever at bay through the night and we were able to get her a doctors appointment on Friday. She has another bacterial infection and was put on an antibiotic. Please pray for no reaction this time. I hate putting her on that stuff but I know she needs it to kill the infection. I guess her little immune system is still compromised since the surgery. Please pray for wellness for Morgan!! She is feeling better to day, no more fever and finally getting getting back her appetite. Those of you that know Morgan know she is definitely not feeling well if she doesn't want to eat. Anyway, it's times like these that I am really tested. Once again, our family had to split up for the weekend. We had planned to go to Billy's parents, but I stayed home with Morgan so Billy and Will could go. I am thankful that when she is well, we are able to travel to see our family, all together as a family. My prayer, though, is that one day we will all get to go do a vacation together as a family. My heart was broken last year when we went to Dallas to Legoland and six flags but she wasn't able to go. She just wouldn't have had fun. However, she is a different child now and God will bless us with that time together and restore that time that was lost! I am believing it!